Multiple myeloma (MM) is a rare blood cancer that Black people are at a higher risk for developing compared with other groups. Promising to be proactive about our health can allow us a chance to catch it early and help treat it.
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Multiple myeloma (MM) is a rare type of blood cancer that disproportionately impacts Black people. Because it’s uncommon and because of challenges within the healthcare system, MM is often overlooked—especially in Black people. As a result, the disease can go undetected until it has already progressed and spread through the body.
But there is hope if you are diagnosed with MM. While there is no cure for MM, a lot of progress has been made, and there are many treatment options available throughout the course of your MM journey.
When you invest in your health, we all benefit. We might not be able to beat the odds of getting MM, but that doesn’t mean we can't improve our chances of being healthier.
Knowing the risks and what to look for can allow us to get ahead of the disease.
MM impacts ~35,000 people a year in the United States, but it disproportionately impacts Black people more than any other racial and ethnic group. Here's what we need to know;
That’s My Word ®has inspired over 1 million MM Promises and counting in the form of statements on our Promise Wall, social media likes and shares, comments, impressions, and resource downloads.
That’s My Word ®is a promise—to ourselves, our loved ones, and our communities. Anyone can make a difference in the lives of people affected by and living with MM. Whether it’s setting up routine checkups, encouraging those at risk to seek out care, or providing long-term support to someone as they go through treatment, your promise is a commitment to better health for yourself and those around you.
Nobody looks out for our health better than we do. Our chances of developing MM are higher than other groups, and it is important you are aware of factors that may put you or others at risk. Risk factors include:
These are some of the risk factors that may increase your chance of developing MM, but they aren’t the only ones.
Let’s face it—if we don’t feel sick, going to the doctor can fall to the bottom of our to-do list. It’s important to remember: Just because you can’t always feel what’s happening in your body doesn’t mean something isn’t going on.
We can live with multiple myeloma, especially if it’s caught early and treated. Like many diseases, the earlier it’s caught, the better the results.
It can be challenging to find MM early on since some people don’t feel symptoms until later stages. For others, the symptoms might be mild, could seem like signs of aging, or be disguised as other diseases with the same symptoms. That’s why we need to follow the 2 key steps for early detection—routine checkups with our doctor and being aware of MM signs and symptoms.
As someone who’s been living with multiple myeloma for the past 10 years, I’m here to tell you there’s hope, especially if you catch it early and get treatment right away like I did.
— Tiffany Hawkins-Williams, multiple myeloma patient and patient advocate
In consideration of the time spent participating in this activity, Tiffany Hawkins-Williams was paid an honorarium by Johnson & Johnson.
They say that a sibling may provide better outcomes for a stem cell transplant. I was in complete [MM] response for 2 years.
—Thomas Goode, multiple myeloma patient and patient advocate
In consideration of the time spent participating in this activity, Thomas Goode was paid an honorarium by Johnson & Johnson.
If your doctor tells you that you have MM, it can feel overwhelming. You might feel shock, fear, anger, sadness, anxiety, disbelief, and other things.
Like many things in life, there are ways to move forward to turn our challenges into opportunities. It’s often in the presence of friends and family that strength and support are found. We are in this together.
There are steps we can take to navigate through this.
There are many medicines to help you or your loved one manage MM. Knowing your options, how medicines work together, and in what order your doctor may prescribe them can help you become a decision-maker in your care.
No one else can feel what’s happening in our bodies better than we can. So, nobody can speak about it better than we can—together and with one another.
Even if you think it might not matter, be vocal when something doesn’t feel right.
By speaking up for your health, you can help improve the well-being of our community.
Like any cancer, having multiple myeloma can take an emotional and physical toll. There are people in your life who are ready and willing to help if you ask.
Our MM journeys are much easier when we know whom to turn to and whom to lean on.
